Bailey also had Nick come by and visit. Unfortunately, she wasn't feeling great but still got to hang out a bit with him:)
I feel like Bailey is over the worst as far as medical issues but is really struggling with coming to grip with her illness. We have been blessed with having several people in our life that know of ways to contact other teenagers with CHD (congenital heart defects). We are actually talking about attending the It's My Heart 5k that is sponsored by TCH on February 18th. It is supposed to be a lot of fun and an opportunity for Bailey to see thousands of people come out and support her cause. I feel like Dustin and I have had 14 years to come to terms with Bailey's diagnosis but for Bailey it is like she is just learning about it. The good news is we are in one of the best places in the world for a kiddo with a heart defect.
Today was also a good day for me. My sweet husband came up with the idea of letting me get out of the hospital to go surprise Maddie for lunch. She was super excited when she saw me in the cafeteria and I had to fight back tears at her joy:) I was also able to stop by Bailey's school and pick up some work for her as well as talk about the best way to tackle all the absences this year. We ended our evening with a visit from old friends from when Dustin worked at Champions. The Killoughs came to see us and Bailey was really happy to catch up with a friend, Elizabeth, who was her partner in crime since about the age of 6. She just said, "I forgot how much I love talking to Elizabeth. She makes me happy." It doesn't get much better than that!!
Hopefully, tomorrow I can talk about moving day. Dustin and I are trying finagle our way off the 7th floor. If we can get to a different floor then she might be able to go to the teen room, Radio Lollipop and maybe even outside. We feel like these things might be a real help for the hospital blues. Thanks again for all your words, prayers, cards, gifts and visits. We are blessed:)
In Christ,
Jackie
Dearest Gist Family.......you are all in our prayers daily. Your family at South Main Church of Christ loves you!! Cecilia Koch
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