Answers- Sort of

      Today has been a rough day.  Bailey didn't sleep well last night and slept from around 1 AM to 6 AM.  She  woke up not feeling well but couldn't go back to sleep.  She fell back asleep around 9:30.  Some positives from today were around 1 o'clock we cuddled in her bed and ate microwavable popcorn while watching a romantic comedy together.
    Around 2:00 a psychologist came by and asked Dustin and I if we would let her and Bailey speak alone.  We were fine with that and Bailey's actual cardiologist came up to speak with us about his opinion on what should be done.  Some of the cardiologists have voiced some concerns on whether proceeding with a cath right now would be the best idea with Bailey's mental stability.  Her cardiologist really feels like it should be done and Dustin and I agree.  He said most of the team agreed with us as well and he would be leaving to go get it scheduled hopefully before the end of the week.  Since we still had time before the psychologist was done with Bailey, Dustin and I went for a walk.  I received a call from the nurse about 20 minutes later that we needed to return back to the room.  When we got there Bailey was unresponsive  and screaming.  She became so physical that they had to put padding around her bed so she wouldn't hurt herself.  It was like she was fighting against someone or something.  The doctors did not want to give her anything to calm her because they wanted the psychiatry team to come up and see what was happening.  After an hour of keeping her from hurting herself ( when I say this I mean pulling out her IV's or bumping her head) they heard the psychiatry team would still be another hour.  Dustin very clearly told the medical staff that it was not an option to let this continue for another hour.  Her heart rate elevated from 70 to 170 and she had to be put on oxygen.  She struggled to breathe throughout this episode and was eventually sedated after I told the medical staff that I had recorded the episode so the psychiatrists could see it.  She is soundly sleeping now and stable. 
     Our meeting with the psychiatry staff lasted about an hour and I showed them several videos that I have recorded over the last several days.  The long and short of it is they feel that Bailey is under such severe and intense stress and anxiety that this is the way her body is handling it.  The good news is they don't feel that it is permanent.  They see an understandably immense fear of death.  They are going to come back tomorrow and speak with her when she is more alert.  They also felt that starting her on some medication for now would be a good idea.  They will start this medicine after they evaluate her tomorrow.  They also agreed that the cath is fine as long as it is medically necessary. 
     I hate to keep asking for more from you but we need prayers that Bailey will feel safe and know she serves a big God that has her in his arms.  We need prayers that the dr who will do the cath will find it medically necessary to do the cath so we don't have to go home unsure that her heart is okay.  That dr is the only one at this point that we have heard voicing concerns about whether it should be done.      
     We are looking forward to a visit from our sweet Maddie tonight.  Please remember her in your prayers as well.  It is difficult for her to be away from us so much during this stressful time and she worries so much about her big sister. . Thank you again for your love and support.  Know that my family is praying blessings on all of you every day. 
In Christ,
Jackie

I thought I would end this post with some happy pictures to make me and hopefully everyone else smile:)