I really don't have a lot of news to give. On Wednesday, neurology came in and told us they were not going to okay an MRI of Bailey's brain. Understandably this was frustrating. Bailey had not been able to eat all day and we had been told everything had been okayed to do the MRI. They waited until 4:30 to come and tell us they were not going to let it happen. Their solution was to send her home and wait until she had stoke like symptoms again. They told us we would need to get her to the hospital as fast as possible to get an EEG the moment she got to TCH. The problem with this is that we have taken an ambulance the last 2 times and she has had an EEG when we got here that showed slow brain activity. In other words it was inconclusive as well. Dustin, Bailey and I respectfully disagreed with the team of neurologists. It doesn't seem to make sense to tell our 14 year old daughter to go back to Jr. High and wait for her to have this happen again in front of all of her classmates. After hearing it from first Dustin, then me and finally Bailey the team left looking a little stunned by our reaction to their decision. They came back after a few moments and said that after discussing it they were ready to go forward with the MRI.
SO . . . it was too late Wednesday to do it and one of the stipulations was that our cardiologist had to be present during the entire test. Our cardiologist had clinic all day yesterday so the MRI couldn't be scheduled until today. We are currently waiting to go downstairs and I actually see the radiology team outside our door. I will update as soon as I know something.
Thanks for the prayers!
Jackie
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